There are three ways to access SPIROMICS data:
1. Proposing a paper in collaboration with a SPIROMICS Investigator
All manuscript proposals and abstracts require approval of the SPIROMICS Publications and Presentations committee. Authors must submit a proposal prior to writing the manuscript/abstract. If approved, the final manuscript draft (that has been reviewed by all co-authors) must be reviewed and approved by Publications and Presentations Committee prior to journal submission.
The proposals for manuscripts can be found here, the proposals for abstracts can be found here, and the complete SPIROMICS Publications and Presentations Policy can be found here.
NOTE: Portions of the Publications section of the website require a user login. To register, click on the Create a New Account button here.
2. Proposing an Ancillary Study
To access data by proposing an ancillary study, you must first submit an Ancillary Study Proposal Form to the SPIROMICS GIC via email. The proposal will be reviewed by the Ancillary Studies Committee, Steering Committee, and NHLBI. Depending on the level of participant burden, Observational and Safety Monitoring Board (OSMB) review may also be required. The complete SPIROMICS Ancillary Studies Policies and Procedures can be found here.
3. Requesting Access to Publicly Available Data
Investigators must submit a Data Materials and Distribution Agreement (DMDA) prior to receiving any data and/or biospecimens, which can be found below.
Once the DMDA is executed, investigators must submit a Data Access Request Form via email attachment outlining the intended use of the dataset, which can be found in the table below.
A list of the available datasets and the complete Data Access Policy can be found in the table below.
|Breath-hold instructions for CT Imaging
|Data Access Policy
|Dataset and Variable Naming User Guide
|Dataset Submission Form
|Longitudinal Analysis Guidelines
|New NHLBI Supplement to the NIH Data Management and Sharing Policy
|Policy on Datasets for Reproducing Manuscript Results
|Sample Quantity Guidelines for Request
|SPIROMICS & SOURCE Data and Materials Distribution Agreement
|SPIROMICS Dataset, Sample, and Analysis Request Form
|SPIROMICS I Available Biomarker Data Summary
|Summary Table of Available Datasets